Author: amufactureweb

SICK from Good Guys Productions on Vimeo.

The Sick Film is a short documentary about Hyperemesis Gravidarum (HG), a life changing and debilitating complication of pregnancy, which leaves women suffering from extreme nausea and sickness. It is NOT morning sickness and it is not normal.

Charlotte Howden suffered with the condition in 2015 when she was pregnant with her son Henry after 20 weeks of battling the physical challenges of the disease, she did get better and was able to manage the condition through medication.

In 2018 after realising that the mental impact of the condition had not left her, she decided to produce the world’s first documentary about the disease.

Charlotte teamed up with filmmaker Lorne Guy and nearly a year and a half later, the Sick film is ready to be launched on the 15th May 2020.

 

Drugs. Probably, no definitely, the last thing a pregnant woman thinks they will have to consider during their first trimester. When I first found out I was pregnant, I made a plan. I was going to start swimming everyday to keep my body healthy, help to keep my tone and to enjoy a new exercise, like I was going to enjoy this new chapter of my life. I was going to eat more vegetables and drink smoothies and generally look after myself.

Woman plans, god laughs. Instead at 11 weeks pregnant I was begging my GP to give me drugs, anything really, just to get me through Hyperemesis Gravidarum.

If you are reading this and you have had or are currently suffering with HG, then you will understand exactly what I am talking about. If you haven’t then maybe this is the post that will help you to finally understand what HG is. It’s SO bad that women who wouldn’t have considered taking an aspirin or paracetamol during pregnancy are asking for off license medication so they can survive.

Last week, I spoke with Dr Gillian Ostrowski, a GP from London who practices in Battersea. She is a three time HG survivor and advocator for women with HG.

I asked her why GP’s are still so reluctant to prescribe anti-sickness medication in pregnancy and she was very honest with me. Which was nice, for a change, to get some real answers. She said that GP’s are still terrified to prescribe anti-sickness drugs in pregnancy. Why? Thalidomide, the legacy that keeps on giving. Its over 50 years since we found out that Thalidomide caused foetal abnormalities. Most of those babies died, but those that did survive were left severely disabled. Marketed as an anti-sickness and nausea drug for the first trimester until it was recalled in 1961.

I can’t imagine how it would feel to know you played a part in such devastation. As a GP your entire purpose is to help not to harm. So I understand this reluctance.

This was over 50 years ago though, a lot has changed since then medically, we now know for example, because of Thalidomide, that medications do transfer from the woman to the foetus via the placenta. This was previously unknown or presumed not to.

So what is a HG sufferer to do? Firstly, if you can get access to medication then you are a step further a long than a lot of women. At this point you should be able to have an honest and open conversation with your GP. I am not a doctor, so my opinion is exactly that, just my opinion, but at this point your GP should be mentioning the following:

• There are what are called “first line” medications that you can take that have a lot of safety data around them. These are antihistamines and phenothiazines. One of the most common of these prescribed to HG sufferers is Cyclizine. Again there is a lot of safety date around these types of drugs and the Royal College of Obstetricians & Gynaecologists in the UK have said since 2016 that these should be offered to women.
• Combinations of these drugs should also be used to manage symptoms.
• Here’s the important one. IF symptoms are persisting and your health is deteriorating (physical and mental) there are “second line” medications that should be offered. These drugs are Metoclopramide and Ondansetron. Both these drugs are currently deemed as safe. However, it would be fair to say that there isn’t as much safety data for these second line treatments.

If your GP simply says “there is nothing I can do” Get another GP immediately or contact the Pregnancy Sickness Support charity, because that is not the case.

If you want to read the 2016 Green-top Guidelines from the Royal College of Obstetricians & Gynaecologists for yourself you can do here.

I took all of the above and only Ondansetron worked for me. I have been very honest about this, so will do so again here, without it, it is very likely I would have terminated my pregnancy.

I was satisfied with why Ondansetron is off license (basically because it hasn’t been tested on pregnant women, because what woman would volunteer to test any drug??) and I weighed up less safety data information at my disposal against a termination.

Until funding for research in to drugs prescribed for women suffering with Hyperemesis Gravidarum is seen as important, we will never be able to say 100% that a drug is “safe” to be used. That’s a fact. But if the Royal College of Obstetricians & Gynaecologists deems second line medication to be safe as of today. That’s good enough for me, as the alternative didnt’t bare thinking about.

I reached out earlier this year to the Royal College of GPs and asked them to comment on some of the accounts and experiences that women have had with GPs when suffering with HG.

This is what they replied.

Professor Helen Stokes-Lampard, Chair of the Royal College of GPs, said: “Vomiting in pregnancy is hugely varied between people, but can be very debilitating for many and GPs are very sympathetic to the impact that severe nausea can have on the health of pregnant women, especially at a time when they often already feel anxious and vulnerable.

“Morning sickness is different for every woman, but GPs will always try to find a solution that works for the individual patient, always starting with non-medication treatments such as recommending plenty of rest, staying hydrated, and avoiding foods or smells that make the patient feel sick.

“However, a significant number of women can be helped by anti-sickness medication – the majority of these drugs are not formally licensed for use in pregnant women, although there are years of experience demonstrating that they are safe.  

“There is currently only one drug that is actually licensed for morning sickness in general practice, but it is not in widespread use, and many women will only consider this as an absolute last resort once every other avenue has been explored.

“GPs are family doctors who want the very best for all our patients so we refute any suggestion that many GPs are not giving women accurate information about how to manage their nausea, or that women are being turned away. The GP consultation is a non-judgmental space where all patients can share their concerns with highly trained and highly skilled experts in the ‘whole person’, so to accuse us wholesale of ‘not believing’ pregnant women is undeserved and very unfair.

“Hyperemesis gravidarum (HG) is a specific, severe and potentially life-threatening condition, causing severe dehydration and weight loss, that in the some cases can only be treated by remaining in hospital.  In these situations, GPs and their teams will work closely with their patient and consider specialist intervention in order to find the right solution.”

So, I have been asked to describe what it is like to have Hyperemesis Gravidarum. I thought I would find this really easy to do. I mean I went through it, I remember it but I can’t find the right words to describe it.

So I thought I would use my creative skills and write a poem instead. So here it is…

Imagine a continuous night,
Imagine no dawn and no light.
Imagine dark shadows and rotting corpses
Picture a body lying, shallow breathing,

She’s paralysed,
If she moves the bile will rise,
The vomit will come,
The teeth will rot, the stomach acid engulfing them

Picture a figure passing, asking
“Please can you eat something?”
“Please you have to drink something!”

The figures scent churns her stomach,
It leaves the door open,
The smell travels into her cell
The oven grease, the house’s dampness,

She can smell it all, her sense is heightened
It hurts please close the door,
Leave me alone,
I know you love me, but I have to be on my own

She swallows the saliva in her mouth,
The pools of spit that form
This ISN’T the norm

1,2,3 and it comes
The stomach rejects the fluid again
Picture another bowl filled, another one to empty,
Picture a body, that’s writhing in pain

Now imagine a pregnant woman and compare,
This isn’t morning sickness don’t you dare
This is torture, prison, the ultimate test of endurance
A fight for survival, with no medical reassurance

Will this last the full 40 weeks,
Or will I be spared?
Isolated she ponders,
Does anyone really care?

Scrolling the endless screen,
There is something they can do,
Has the Doctor not offered it to you?
There’s medication they can prescribe,
They won’t cure, but they could help you to survive

They told me there was only one choice,
I couldn’t speak out against them, they wouldn’t hear my voice
“You have the option to abort this wanted life,
No longer be a mother, go back to just a wife”

Her body feels relief, there is another way
I’ve screamed, prayed and begged for this,
Every single day,

I’ve asked for god to take my life,
To swallow me up and make it end,
So listen to me now, it is on you
I entirely depend.

Thanks for joining me on this journey to raising awareness for HG sufferers! We can do this, we can get the message out there and we can invoke change.

Good company in a journey makes the way seem shorter. — Izaak Walton